Citizen Research + AI
A new, community-led approach to ALS research where lived experience, technology, and AI come together to transform diagnosis, care, and treatment development.
Mission
Empowering the ALS community through technology, data, and compassion to accelerate better diagnosis, treatment, and care.
Vision
A future where breakthrough ALS diagnostics and treatments are accessible to everyone, everywhere.
Core Values
We are guided by empathy, innovation, and community in everything we do.
for pALS
Care & Citizen Research Journey
for People with ALS & Caregivers. Support, connect, and participate — all in one place.
Key Elements:
Attend bi-weekly Expert Talks
Use SAVA (our expert Chatbot) to answer your questions regarding the latest research developments
Connect with our pathfinder support team (PALS and CALS who are also on the journey) via monthly community fireside chats or individual reach out
Track your disease journey to support your care needs in our EverythingALS app
for Professionals
22
Biopharma Consortia
Partners
1
Clinical Endpoint on FDA Path
3
(Continents)
3
Continents - US, Canada, Australia, (EU in 2026)
12
Active Research Trials
Supported
Professional & Innovation Journey
for Researchers, Clinicians, Pharma & Tech Partners, Collaborate, explore, & contribute to cutting-edge ALS research.
Key Elements:
Access to open innovation and de-identified longitudinal datajets to drive discovery
Contribute at Roundtables, Expert falls, and Fireside Chats
Advance digital biomarkers and explore clinical Al tools
Collaborate on publishing findings and sharing community-driven insights
In the Spotlight
Expert Talks: Every 2 weeks
With the expert in your living room via zoom – ask your questions!
Completed
ALS Research Summit - 3
- Jan, 30 2026
- 4:00PM PST
Speaker Name Here
Speaker Designation Here
Completed
ALS Research Summit - 1
- Feb, 1 2026
- 1:35PM IST, 3:05AM EST
Dr. Merit Cudkowicz
Director - ALS Clinical Research
Completed
ALS Research Summit - 3
- Feb, 3 2026
- 4:00PM PST
Speaker Name Here
Speaker Designation Here
Completed
ALS Research Summit - 2
- Feb, 5 2026
- 1:37PM IST
Speaker Name Here
Speaker Designation Here
Live Streaming
ALS Research Summit - 2 14
- Jan, 1 2026
- 1:37PM IST
Speaker Name Here
Speaker Designation Here
Completed
ALS Research Summit - 3 14
- Feb, 26 2026
- 4:00PM PST
Speaker Name Here
Speaker Designation Here
- Feb 25, 2026
EverythingALS Launches New Open Data Portal 3
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
- Feb 24, 2026
EverythingALS Launches New Open Data Portal 13
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
- Feb 23, 2026
EverythingALS Launches New Open Data Portal 12
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
- Feb 22, 2026
EverythingALS Launches New Open Data Portal 11
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
- Feb 21, 2026
EverythingALS Launches New Open Data Portal 10
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
- Feb 20, 2026
EverythingALS Launches New Open Data Portal 9
A new initiative allows researchers worldwide to securely access patient datasets and collaborate on innovative ALS solutions.
Our Channel has over 250+ hours of expert talks,
Watch their interviews, insights, and discoveries on
*Join as pALS Community
Our Process
EverythingALS Process
A simple journey of how you can be part of EverythingALS — from joining the community to actively contributing toward care, research, and finding a cure for ALS.
Join the Community
Connect with people affected by ALS.
Attend Events
Engage in expert talks and support meetings.
Participate in Research
Contribute to studies and trials advancing ALS science.
Support the Mission
Raise awareness, share data, and drive the search for a cure.
Stay connected
Citizen-Driven Research to Accelerate Cures
The EverythingALS app helps you log symptoms, join studies, receive reminders, and stay in touch with the ALS community.
Everything in one place
Access your dashboard for health stats, study participation, and important updates.
Stay Trial-Ready
Monitor your ALS to better prepare for matching to clinical trials
Ask SAVA anytime
Get 24/7 AI Powered answers on research, expert talks and personalized trial-matching guidance
Citizen-driven research
Join studies that accelerate cures and share insights with your care team
Connect. Share. Get real support
Engage with pathfinder, real human support, and peer forums to share experiences and find guidance
Track your health
Track your health and share with your care team
Free App On
As Seen On
Everything ALS in the News
We’re proud to be recognized and featured by global leaders who share our mission to accelerate ALS research and empower patient communities
Featured On
The Power of Together
Take action, Join this movement
Support the Movement
Be part of our community and help make a difference.
Make a Donation
Your contribution helps fund critical research and support
Thank you to our donors who have made EverythingALS Possible
Indu Navar & Family
$100,000
Ming Hsieh & Fortinet
$10,000
Anonymous
$15,000
Kurt Kufeld & Monica Paris
$10,000
Willy & Cindy Stiggelbout
$10,000
Peter Vosshall
$10,000
A gift to EverythingALS is the most powerful statement you can make in support of the people with ALS
Your donation acts as a catalyst to help people with ALS by providing matching funds from sponsors and funds that people with ALS are able to raise from within their own circles.
Your generosity makes it possible for EverythingALS team to continue helping people with ALS. With your support, we will grow research to bring diagnostics and treatments to market working with the collaborators across the globe and create support for Expanded Access to make clinical trials accessible to all.
Gifts to EverythingALS are 100% tax-deductible. EverythingALS is brand of Peter Cohen Foundation, a non-profit 501(c)(3): EIN 84-3055901
Speech Project Sign-Up
Join our speech preservation research initiative.
Join the Fight Against ALS
Support research, care, and community.
Whether you’re a patient, researcher, caregiver, or supporter — your voice matters. Join our growing community to contribute, connect, and make a lasting impact in the ALS journey.
