The Pathfinders are compassionate volunteers and professionals who dedicate their time to support individuals and families affected by ALS. They act as mentors, advisors, and companions—helping people navigate physical, emotional, and spiritual challenges with courage and care.
The Pathfinders are a group of compassionate volunteers of pALS and cALS who dedicate their time to support individuals and families affected by ALS. Fueled by their collective disease journey experience, they act as mentors, advisors and companions – helping navigate physical, emotional and spiritual challenges with courage and care.
In our 'CARE TO CURE' mission, the pathfinders are the core team in supporting from their own experience navigation of the disease for individuals diagnosed with ALS (PALS) and their families.
Isolation can manifest in physical, mental, and emotional forms. A Pathfinder listens to PALS for cues and discusses solutions that could help meet their needs.
New tools and resources are continuously being developed to ease daily life for pALS and their families. Pathfinders are knowledgeable about ALS and actively seek awareness of tools that help pALS live as normal a life as possible. Examples include custom-adapted wheelchairs, adaptive methods for eating, holding phones, opening doors, and eye-gaze technology, to name just a few.
A Pathfinder is someone who has the time, compassion, and experience needed to support individuals diagnosed with ALS and their families.
Firstly, we aim to match our personalities and experiences to build trust between the pALS, their loved ones, and the Pathfinder. pALS need a good listener, which is crucial for encouraging open communication. Once trust is established, pALS feel more comfortable expressing their true feelings. We prioritize privacy to help pALS share their personal concerns without fear.
You are welcome to click on this video link providing a glimpse into our internal pathfinder team meetings. Please note, that for privacy reason, we never document our fireside chats with the community at large.
Pathfinders participate in our Expert Talk series, monthly Fireside Chats, and planning meetings. These events allow us to maintain visibility within the ALS community and foster trusting relationships through interaction and support.
The Everything ALS app, available on the Apple App Store and Google Play Store, includes various features to support pALS, their families, and their doctors. One section, called 'Connect: Ask Anything' lets users meet the Pathfinders. Each Pathfinder has a photo and a bio detailing their experiences, whether as someone with ALS or as a caregiver. Pathfinders are like pen pALS, but we are Care PALS.
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In our 'CARE TO CURE' mission, the pathfinders are the core team in supporting from their own experience navigation of the disease for individuals diagnosed with ALS (PALS) and their families.
Isolation can manifest in physical, mental, and emotional forms. A Pathfinder listens to PALS for cues and discusses solutions that could help meet their needs.
New tools and resources are continuously being developed to ease daily life for pALS and their families. Pathfinders are knowledgeable about ALS and actively seek awareness of tools that help pALS live as normal a life as possible. Examples include custom-adapted wheelchairs, adaptive methods for eating, holding phones, opening doors, and eye-gaze technology, to name just a few.
A Pathfinder is someone who has the time, compassion, and experience needed to support individuals diagnosed with ALS and their families.
Firstly, we aim to match our personalities and experiences to build trust between the pALS, their loved ones, and the Pathfinder. pALS need a good listener, which is crucial for encouraging open communication. Once trust is established, pALS feel more comfortable expressing their true feelings. We prioritize privacy to help pALS share their personal concerns without fear.
You are welcome to click on this video link providing a glimpse into our internal pathfinder team meetings. Please note, that for privacy reason, we never document our fireside chats with the community at large.
Pathfinders participate in our Expert Talk series, monthly Fireside Chats, and planning meetings. These events allow us to maintain visibility within the ALS community and foster trusting relationships through interaction and support.
The Everything ALS app, available on the Apple App Store and Google Play Store, includes various features to support pALS, their families, and their doctors. One section, called 'Connect: Ask Anything' lets users meet the Pathfinders. Each Pathfinder has a photo and a bio detailing their experiences, whether as someone with ALS or as a caregiver. Pathfinders are like pen pALS, but we are Care PALS.
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