Our priority is to provide support for individuals with ALS—from care to cure. As an EverythingALS Pathfinder, you’ll never be alone. This is a community where your voice is heard, your story matters, and together we bring strength, hope, and resilience.
Peer-to-peer support, emotional connection, and shared stories that remind you you’re never alone. Connect with others who truly understand the ALS journey.
Peer-to-peer support, emotional connection, and shared stories that remind you you’re never alone. Connect with others who truly understand the ALS journey.
Peer-to-peer support, emotional connection, and shared stories that remind you you’re never alone. Connect with others who truly understand the ALS journey.
Peer-to-peer support, emotional connection, and shared stories that remind you you’re never alone. Connect with others who truly understand the ALS journey.
Our Pathfinders offer one-on-one guidance to people living with ALS and their families. From navigating care options to accessing resources, they provide compassionate support to make every step of the journey easier.
Bringing innovation and energy to ALS awareness.
Ongoing support to strengthen mental well-being for patients, caregivers, and families—you’re not alone.
Guidance to find solace, meaning, and hope, ensuring a holistic approach to healing.
Access personalized resources and CARE programs tailored to the unique challenges of living with ALS. Our team ensures you’re never alone in your journey.
Key Details:
Our Student Ambassadors & Fellows are young leaders, researchers, and advocates passionate about making an impact in the fight against ALS. They support the ALS community, drive awareness, and help bridge the gap between patients, research, and innovation.
Bringing innovation and energy to ALS awareness.
Students from diverse backgrounds, united by one mission.
Building meaningful relationships with patients and caregivers.
Preparing tomorrow’s doctors, researchers, and changemakers.
Only 3 years to making speech a novel and objective measure in ALS
A simple journey of how you can be part of EverythingALS — from joining the community to actively contributing toward care, research, and finding a cure for ALS.
Connect with people affected by ALS.
Contribute to studies and trials advancing ALS science.
Engage in expert talks and support meetings.
Raise awareness, share data, and drive the search for a cure.
The EverythingALS app helps you log symptoms, join studies, receive reminders, and stay in touch with the ALS community.
Access your dashboard for health stats, study participation, and important updates.
Monitor your ALS to better prepare for matching to clinical trials
Get 24/7 AI Powered answers on research, expert talks and personalized trial-matching guidance
Join studies that accelerate cures and share insights with your care team
Engage with pathfinder, real human support, and peer forums to share experiences and find guidance
Track your health and share with your care team
Hear from people living with ALS and caregivers who share their experiences, challenges, and victories. Their voices inspire strength, courage, and hope.
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
We’d love to hear from you and welcome you to the ALS community.
Whether you’re a patient, researcher, caregiver, or supporter — your voice matters. Join our growing community to contribute, connect, and make a lasting impact in the ALS journey.
