Our platform provides access to the latest ALS studies, trials, and resources tailored for clinicians and academic researchers. Collaborate with peers, share findings, and stay at the forefront of ALS science.
Access evidence-based recommendations and best practices for ALS care.
Stay updated on clinical studies and explore opportunities for collaboration.
Connect with fellow clinicians and researchers across the globe to share insights.
EverythingALS champions transparency by offering open-access data to the ALS research community. Gain insights, validate findings, and drive innovation through collective knowledge-sharing.
Access robust, longitudinal data including speech studies, digital biomarkers, and patient-reported
All data is IRB-approved, anonymized, and governed by strict protocols to protect participants.
Explore trends with cohort characteristics, study session logs, and digital health metrics.
Engage with data contributed by 7,000+ pALS, caregivers, and healthy controls through EverythingALS’s grassroots research network.
Hours of Data
Study Sessions Logged
Active Participants
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We work with pharmaceutical companies and technology partners to accelerate research and bring new therapies to patients. Join our mission and be part of groundbreaking solutions.
A secure hub to access research data, resources, and collaboration tools.
Co-develop studies, pilot programs, and technology-driven innovations in ALS care.
Explore real-world examples of successful partnerships driving measurable progress.
Every voice matters. By participating in clinical studies, surveys, and data-sharing, you directly contribute to breakthroughs in ALS research and treatments.
Launched our first citizen-driven observational studies, inviting people with ALS (pALS) to share speech, movement, and daily health data remotely.
Expanded research access through the EverythingALS app, enabling more pALS to join from home and contribute to digital health data.
Community participation fueled predictive AI tools and clinical readiness. Observational data began translating into drug trial designs.
Contributions from pALS led to clinical validation of speech & motor biomarkers, and the launch of Vision 2030, accelerating ALS drug discovery
Hear from researchers, clinicians, and industry leaders who are shaping the future of ALS care and treatment. Their stories highlight the dedication and innovation driving progress.
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
52 Year Old – Living with ALS for 3 years
“ALS may have slowed my body, but it hasn’t stopped my will to live fully with my family.”
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
Daughter & Advocate
My dad’s resilience has shown me the meaning of strength, and now I advocate for ALS awareness every day
Sign up to collaborate, share your research, or learn how to get involved as a professional.
Whether you’re a patient, researcher, caregiver, or supporter — your voice matters. Join our growing community to contribute, connect, and make a lasting impact in the ALS journey.
